I’d Give Anything Not to Tell You This, But Sometimes Nightmares are Real

Had my first ever videoconference with a shrink today. First ever videoconference, ever, actually. Went pretty well.

The Matrix Therapist had sent the doc the list of meds I’d brought in for her to look at…the ones I was taking 10 years ago, the ones that actually were doing something. And the shrink actually looked that shit over BEFORE we met.

Pretty cool setup, and I had about 40 minutes of her time, which was also cool. We’re stopping the Geodon, even though I’m only taking a third of the max dosage. Gonna try Abilify again.

It’s important to note that the one and only time I’ve had an adverse reaction to a medication – and I’ve been on a LOT of meds – was with Abilify. I fainted. After ONE dose.

But.

I now suspect that the fainting (and it was years ago, after I was first diagnosed as bipolar) was a low blood-sugar event. So we are gonna try it again, because I’ve heard really good things about Abilify. Plus, it doesn’t have a sedating effect, which Geodon is known to have at higher dosages. I want to be calm and relaxed, but I don’t want to feel sleepy all the time. Fuck that.

First, as I mentioned already, we’re gonna have to ween me off the Geodon. That’ll take only about 10 days or so to do, and I don’t look forward to being without something in my system for that long, even if I don’t think it’s doing anything. Could takes weeks or (God help me) months for Abilify to gain full efficacy. Not looking forward to that, either, especially since it’s hard to maintain hope. So many drugs do nothing for me.

We’re also going to try a new med for the nightmares. She asked me if I’d ever taken anything for them, and I said, “Like what? Name a drug and I’ll tell you if I’ve tried it.” She did, and I hadn’t. No one has EVER suggested a med to specifically target the nightmares. I didn’t even think to ASK for such a thing.

The nightmares, ugh. I won’t even get into detail about them here. Some of them are really horrific. The most common theme is I’m being chased by baddies, sometimes monsters that make “Nightmare Before Christmas” and “Hellboy” monsters look warm and fuzzy, sometimes it’s people. Always within arm’s reach, constantly grabbing at my shirt, just touching the back of my neck. And I’m not a runner, people. Hell, I consider walking to my car exercise. But I run like a mutherfucker in my nightmares. Trust me, you would, too.

I’ve woken myself up falling on the floor on multiple occasions, and it’s always when I’m kicking at the blankets on my feet, thinking they’re monsters trying to grab me. Hit my head on the nightstand more than once falling out of bed. Plus, the sleepwalking…I’ve done that, too. So the suggestion of Ambien today didn’t go over well with me. Never tried it, but I don’t need to be DRIVING in my sleep, and that’s not unheard of on Ambien. I’m not about to start hiding my car keys from my own damn self.

I was told during my very first psychiatrist meeting – back in the mid 90’s – that the average person has one nightmare a year. ONE. That is alarming to me, still. I don’t know if it’s true or not. I just know that it’s nowhere CLOSE to my reality.

I have 2 or 3 a week, minimum. The prospect of meds that can help with that? It’s too much too hope for, honestly. If it doesn’t work, I’m going to be really let down. And I suspect I’m going to be really let down.

So…weening off the Geodon. Starting Abilify after that, which should arrive in the mail with the nightmare vanquishing med. Can’t remember the name of that one right now.

I took notes during our videoconference. I like this doc. She’s good. She listens, she offers advice, she explains things well without being condescending. She’s proactive. She doesn’t think Adderall is a good fit for me, even though I clearly remember it working well. And I’m willing to listen to her, and believe her.

I just don’t know if I have the patience for this go-round of Karl’s Medication Olympic Trials. I say that every time, and I mean it every time, but this time it REALLY feels true. Coming off the tail-end of a strong manic phase only serves to give me sharp contrast between mania and my usual depressive state. And it hurts. A lot.

But I’m a survivor, right?

Speaking of which, a big happy anniversary to Violence Unsilenced. Maggie celebrates a year today, as do the many people that have broken the silence. She is doing great work over there. Go show some love, eh?

18 Responses to I’d Give Anything Not to Tell You This, But Sometimes Nightmares are Real
  1. Rachel
    February 18, 2010 | 6:46 am

    I am on Abilify and it works great for me. I can climb the scary steps that I use to avoid and I was even able to climb to my attic. It also helps me with the whole stress and work thing which is why I was on it to begin with. (I have a horrific fear of stairs which is why the scary stairs and the ladder to my attic are a big deal, not regular stairs like in a two story house, just all others)

    hope it works for you.

    Reply

    Secondhand Karl Reply:

    @Rachel, See, these are the sorts of things I hear about it. I just hope it doesn’t make me faint. I HATE that feeling.

    Reply

  2. GeekyTaiTai
    February 18, 2010 | 8:06 am

    Karl, we’ve talked about my son’s illness and he’s tried just about every psychiatric/epileptic med too. Both he and Mr. GTT suffer nightmares if not every night, several times per week and are usually the same type of “theme” that you suffer. My son is also a sleep-walker-eater. He never truly has a good sleep, which doesn’t help anyone let alone someone with an illness as serious as his. Do you remember what the doc prescribed for the nightmares?

    I guess the doc can’t prescribe a low-dose SSRI during the weaning phase of Geodon? I hope that Abilify works for you. I’m glad you’re going to give it a try. **hugs**

    Reply

    Secondhand Karl Reply:

    @GeekyTaiTai, I’ll have to wait till I get the script before I can tell you what it is. It’s an off-label use for a drug, I know that. I’ll keep you posted.

    Reply

  3. Sybil Law
    February 18, 2010 | 8:18 am

    Yes – you ARE a survivor.
    Now go listen to Gloria Gaynor and have a great day!
    xoxo

    Reply

    Secondhand Karl Reply:

    @Sybil Law, Heh, good ol’ Gloria.

    Reply

  4. Tiffany
    February 18, 2010 | 9:42 am

    You ARE a survivor! And, though my mental demons were and are different than yours, I know how frustrating it can be to try different cocktails of this drug and that drug until you finally hit upon the combination that works. And then… it stops working, and you have to find ANOTHER cocktail… and and and. I also know how stressed and kind of panicky you may be feeling about the concept of the wean down. YOU WILL BE OKAY, just try to remember to breathe! That was my issue, anyway… holding my breath until I almost passed out – saw the pretty sparklies in my peripheral vision and everything. Should come naturally, this breathing thing, shouldn’t it? Feh. The nightmare thing sounds just AWFUL, and now I guess I know why I see late night tweets from you so often, huh? I’d be nervous to go to bed, even. So, yes, you have far more strength than you give yourself credit for, I think. Squeezing your hand from afar… take good care!

    Reply

    Secondhand Karl Reply:

    @Tiffany, Breathing is good. Yeah, the trial and error thing, ugh. Hopefully I don’t see pretty sparklies, unless they’re on my rhinestone-studded boxers.

    Reply

  5. Finn
    February 18, 2010 | 9:45 am

    I can’t imagine the nightmares. I’m sending good vibes that the meds will work for them. And that the Abilify will do what it’s supposed to.

    Reply

    Secondhand Karl Reply:

    @Finn, Thanks. I hope so, too.

    Reply

  6. Princess of the Universe
    February 18, 2010 | 12:41 pm

    I can never quite sort out if my “crappy” dreams are nightmares or not. I guess if I have to ask, probably not.
    Let’s hope this latest mix helps you…sleep is supposed to be a comfort and refuge, not a trial…
    xoxo

    Reply

    Secondhand Karl Reply:

    @Princess of the Universe, Amen to that.

    Reply

  7. martymankins
    February 18, 2010 | 11:32 pm

    I’ve not had to take any meds in my life, much past a Prevacid or an OTC painkiller. But I have many a friend who has and it’s helped them a lot.

    So while this friend of your’s may not know exactly what you are going through, I do know that I am hoping that things will start to improve for you.

    Reply

    Secondhand Karl Reply:

    @martymankins, Thanks, dude. I’m glad not everyone needs the meds.

    Reply

  8. Coal Miner's Granddaughter
    February 23, 2010 | 4:25 pm

    That transition from what you’re taking now to what you need to take must be frightening. I know you’ll make it, hon. And more than one nightmare a year? I don’t know how you’ve done it. I would think that just getting those under control would change quite a bit of your outlook. It would mine.

    Reply

    Secondhand Karl Reply:

    @Coal Miner’s Granddaughter, Honestly, I can’t even imagine my life without nightmares. No idea what that world even looks like.

    Reply

  9. Zoeyjane
    February 24, 2010 | 1:41 am

    I’m curious – sorry to think of you like someone to study, but – when’d the nightmares start (I haven’t stalked your archives. I can, if you want. And be super creepy about it.)? Cuz I started Depakote in October, being someone who usually doesn’t dream/remember them, and I’m averaging about 1 or 2 nightmares a month now. Waking up yelling, falling on the floor, running in my sleep, punching the person sleeping next to me (sorry, kid) things.

    I didn’t stop to think that they might be abnormal.

    Reply

    Secondhand Karl Reply:

    @Zoeyjane, Not creepy at all. So far. ;)

    My nightmares have been for as long as I can remember, honestly. Wasn’t something brought on by medication. What you’re going through isn’t normal. It may be “normal” for people on Depakote, I don’t know. Haven’t taken that one. Regardless, I’d talk to your doc about the nightmares. May be something different you can take.

    Reply

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